Administrative Data Liaison Service

News on data sharing and consent practices:

Across the UK, there is much interest in linking social science studies and surveys to respondents’ routine administrative records, which are generally held by government departments.  Such linkage improves the power and utility of research data by including new information that may not be easily obtained and reduces the costs, time and resources necessary to collect such additional data using traditional methods.  Typically, consent requests are made to link to a person’s health, education and economic routine records.

 The ADLS has recently reviewed the existing consent practices used by some of the major social science studies and surveys in the UK.  These were:

 1. Avon Longitudinal Study of Parents and Children.

2. Born in Bradford.

3. British Household Panel Study.

4. Families and Children Study.

5. Health Survey for England.

6. Millennium Cohort Study.

7. National Survey for Wales.

8. Scottish Health Survey.

9. Southampton Women’s Survey.

10. UK Biobank.

11. Understanding Society.

The review highlighted that there were varying practices undertaken when requesting consent to link to administrative records.  You can download a compilation of all the consent forms and information leaflets used for the review from the following link:

http://www.adls.ac.uk/wp-content/uploads/Studies-and-surveys-documentation.pdf.

The full review will be available in late Autumn.  For any further information you can contact:

Administrative Data Liaison Service
Irvine Building
North Street
ST ANDREWS
Fife
KY16 9AL

Web: www.adls.ac.uk

Email: ADLS@st-andrews.ac.uk

Telephone: 01334 46 3901

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NEW: P-ADLS Methods, Models and Codes Bank for administrative data research – www.adls.ac.uk/padls.

Posted on September 29, 2012, in News and tagged , . Bookmark the permalink. Leave a comment.

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